Fox Rocks was founded in honor of Courtney by her older brother, Shane Limberg, after witnessing firsthand how FOXG1 syndrome shaped their family’s life. Courtney’s journey brought awareness to the daily challenges, resilience, and strength experienced by individuals with FOXG1 syndrome and the families who support them. Through her, our family gained a deeper understanding of the importance of advocacy, community, and access to resources.
Courtney continues to be the inspiration behind Fox Rocks. This organization was created to transform a personal family experience into meaningful action, raising awareness, supporting families, and ensuring that individuals with FOXG1 syndrome and their caregivers are not navigating this journey alone. Her legacy lives on through the continued commitment to the FOXG1 community.